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Relevant facts of 2023

The Aspace Catalunya Foundation participates in the 35th annual meeting of the European Academy of Child Disability.

From May 24 to 27, in Ljubljana (Slovenia), a quiet, green, sustainable city with no architectural barriers, the 35th annual meeting of the European Academy of Child Disability (EACD) took place with the participation from the Aspace Catalunya Foundation.

This year's theme was "Smarter Goals for a Better Future", emphasizing the importance of setting goals in all rehabilitation processes for children and youth with disabilities.

The main topics of the conference included:

  • early intervention
  • advances in the management of *rare diseases
  • pain management in children with developmental disorders
  • the active role of the child and the parents in the rehabilitation process
  • advances in the technological support of rehabilitation

In the conferences, they highlighted the participation of patients and their families, evaluation using tools such as the GAS scale to measure the achievement of personalized goals and the importance of developing new technologies based on the real needs of patients. The need to find tools and strategies to increase physical activity in the patients' usual environment was also mentioned, facing barriers such as the lack of adaptation of sports spaces, limited accessibility and the lack of adequate advice.

From the Aspace Catalunya Foundation we participated by presenting 3 posters aligned with the thematic axes of the congress:

NEURODEVELOPMENTAL DISORDERS: CHALLENGES AND CHANGES

Neurodevelopmental disorders represent a diagnostic challenge in the first years of a child's life, with implications for addressing difficulties at all levels. In this study, we explore this double aspect of diagnosis in neurodevelopmental disorders, retrospectively analyzing 165 cases that were followed initially in our CDIAP and later in the Ambulatory Care Service Specialized in neurodevelopmental pathologies, cerebral palsy and multiple disabilities.

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APPROACHING SPASTICITY WITH SHOCK WAVES IN CEREBRAL PALSY

Our poster on the treatment of spasticity with shock waves in cerebral palsy generated a lot of interest among all attendees, who were intrigued by how the therapy works and the results we obtained in physiological improvement and functional of the treated patients.

SUPPORT TECHNOLOGY IN THE REHABILITATION PROCESS OF PEOPLE WITH CEREBRAL PALSY

Using five examples of patients with varying levels of severe functional disability, we demonstrated how tools such as eye reading and programs designed specifically for non-ambulatory quadriplegic patients can improve their quality of life and provide them with greater access to resources that improve their communication and participation in their environment.

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In summary, we were excited to hear experts in Cerebral Palsy and Childhood Disability emphasize that this Congress has generated a shared vision and studies from different parts of the world that converge on a similar approach. This reflects a synergistic collaboration between professionals dedicated to helping our community. The participation of the Aspace Catalunya Foundation in the EACD allows us to stay updated, establish collaborations and strengthen work in the field of child disability. A great help to offer support and care to people with cerebral palsy and their families.